The Cornelia de Lange Syndrome (CdLS) Foundation honored Elmhurst College professor Marjorie Goodban with the John King Award on June 23.
The award was presented at the national family conference of the CdLS Foundation in Lincolnshire. It is presented biennially to an individual whose long-term efforts on behalf of the foundation have made a great impact, according to a press release.
Goodban is a speech language pathologist who has been working with children with CdLS since 1984.
“We have been fortunate to learn from her over the years and look forward to having her in our family for many more,” said Acting Executive Director Marie Malloy.
Founded in 1981, the Cornelia de Lange Syndrome Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lifetime.
For more information, call (800) 753-2357 or visit www.cdlsusa.org.